In 2024, I was diagnosed with a malignant peripheral nerve sheath tumor MPNST, a rare and aggressive cancer. The tumor involved my sciatic nerve. I underwent complex surgery in Germany, followed by 33 radiotherapy sessions. Despite this, the disease returned only a few months later. I consulted doctors in Germany, Israel, the United States, Singapore, Russia and Thailand. I kept hearing variations of the same message: there were very few meaningful options left. Then I discovered a part of Japanese medicine that international patients rarely hear about. After my medical records were reviewed by Japanese doctors, they developed an individualized treatment program for me. During 2025, I received a combination of cellular immunotherapy and other personalized approaches, including modified natural killer cells, dendritic cells and immune-supporting regenerative therapies. My follow-up MRI and CT examinations in November 2025 and March 2026 showed no evidence of active disease. I remain under regular surveillance, and I understand that remission is not a guarantee of what happens next. But today I am alive, active and deeply grateful that I continued searching.
I am not a doctor, and I cannot say whether the treatment I received would be appropriate or effective for anyone else. I am also not here to advise people to abandon conventional oncology. Every decision must be made by a patient together with qualified physicians.
I joined this community to share what actually happened to me: how I found the doctors, how my case was evaluated, what treatments I received, what the process cost, and what international patients should realistically expect from treatment in Japan.
Which part would you like me to explain first?
1. How I found the Japanese doctors
2. What my individualized treatment involved
3. The practical process and cost of treatment in Japan
